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AIDS and Accusation: Haiti and the Geography of Blame (Comparative Studies of Health Systems and Medical Care)

Paul Farmer

AIDS and Accusation: Haiti and the Geography of Blame (Comparative Studies of Health Systems and Medical Care) Paul Farmer List Price: $19.95
By: University of California Press
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Total reviews: 4 Average rating: 5.0 of 5

Reading this book will change your life 5 out of 5 stars.
16 of 17 people found this review helpful.

Farmer's excellent historical ethnography of Haitian illness (as seen through the contemporary context of the world AIDS epidemic), proves the necessity of developing anthropological approaches to understanding health systems and implementing medical care. The diagnosis and analysis of sickness, disease, illness, and treatment should go hand-in-hand with the cultural understanding of local systems of blame, accusation, causation, and cure. Where most approaches to medicine are based on the "Westernized" first-world nations' understanding of the causes of illness (tainted as well, as Farmer shows, by systematic "blame the victim" and shame techniques), the adoption of these approaches in treating the illnesses of other peoples can be catastrophic. Three ethnographies make up the structure of a detailed historical inquiry )

The longstanding tradition of conceiving of illness through the lens of powerlessness shapes the contemporary lives of the people in Haiti with whom Farmer worked. Although they could see the effects of the illness, people in this region were obsessed with the cause of the illness, and felt the need to understand AIDS through a constructed narrative of blame. A deep belief in their religion led villagers to look for the source of witchcraft that could possibly be harming them, and elaborate stories about neighbors, jealousies, and rivalries flourished as a result. Any improvement in the standing of one member of the society (through wealth, status, relationships, acquisition of property or food, or political power through employment or marriage) adds to the structure of distrust and blame.

Farmer's book shows how disturbingly complex and deep the layers of mistrust, misinformation, and the effects of racism, are. Among the medical hypotheses for the probable exposure is the theory of Haitian sex-workers' contacts through gay tourists to the early strains of HIV. Farmer outlines the long history of Haiti as a gay tourist attraction, and Duvalier's encouragement of tourism as a boost to the domestic economy. Although the possible cause of the gay sex trade for HIV exposure has not been confirmed, medical establishments in the U.S. based their theories of causation on other factors, such as Haitian religious practices. These theories were, in truth, reinforcing longstanding ignorance and racist misunderstandings about Haitian vodou. Stereotypes and racial profiling of Haitian citizenship as a "risk factor" (one of the "Four H's" along with hemophiliac, homosexual, and heroin user), contributed to public policies against Haitian immigrants. Haitians' belief that they are being attacked by some evil sorcery in the guise of a fatal illness called sida falls into place amidst the context of extreme antagonism and injustice.

While reading this book, I was compelled to ask myself if there isn't some truth in Haitians' understanding of AIDS as the result of malicious sorcery. Haiti was the only American society to successfully result from the direct action of a revolution against slavery and colonialism. As such, the small nation governed by creoles and black ex-slaves presented a threat to North and South American colonial societies, which were firmly entrenched in slave labor economic systems. Historically, the threat of a repeat of the Haitian revolution must have terrified white European landowners. This terror of African power and strength has been passed on in a racist legacy, adapted to political policies and nationalist agendas, and still exists in ignorant beliefs about AIDS and its causes. Haitians believe that they are victims of a longstanding racist agenda, and they may in fact be right. Farmer's book begins to illuminate some of the complicated historical and ethnographic realities of the overlapping connections between illness and racism, and between causes and effects.

Editorial Review:

Does the scientific "theory" that HIV came to North America from Haiti stem from underlying attitudes of racism and ethnocentrism in the United States rather than from hard evidence? Anthropologist-physician Paul Farmer answers in the affirmative with this, the first full-length ethnographic study of AIDS in a poor society.

The Boundaries of Blackness: AIDS and the Breakdown of Black Politics

Cathy Cohen

The Boundaries of Blackness: AIDS and the Breakdown of Black Politics Cathy Cohen Amazon Price: $18.90
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Total reviews: 5 Average rating: 4.5 of 5

Editorial Review:

Last year, more African Americans were reported with AIDS than any other racial or ethnic group. And while African Americans make up only 13 percent of the U.S. population, they account for more than 55 percent of all newly diagnosed HIV infections. These alarming developments have caused reactions ranging from profound grief to extreme anger in African-American communities, yet the organized political reaction has remained remarkably restrained.

The Boundaries of Blackness is the first full-scale exploration of the social, political, and cultural impact of AIDS on the African-American community. Informed by interviews with activists, ministers, public officials, and people with AIDS, Cathy Cohen unflinchingly brings to light how the epidemic fractured, rather than united, the black community. She traces how the disease separated blacks along different fault lines and analyzes the ensuing struggles and debates.

More broadly, Cohen analyzes how other cross-cutting issues—of class, gender, and sexuality—challenge accepted ideas of who belongs in the community. Such issues, she predicts, will increasingly occupy the political agendas of black organizations and institutions and can lead to either greater inclusiveness or further divisiveness.

The Boundaries of Blackness, by examining the response of a changing community to an issue laced with stigma, has much to teach us about oppression, resistance, and marginalization. It also offers valuable insight into how the politics of the African-American community—and other marginal groups—will evolve in the twenty-first century.

Global AIDS: Myths and Facts, Tools for Fighting the AIDS Pandemic

Alexander Irwin, Joyce Millen

Global AIDS: Myths and Facts, Tools for Fighting the AIDS Pandemic Alexander Irwin, Joyce Millen Amazon Price: $12.92
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Editorial Review:

AIDS is the most devastating communicable disease in history, and structures of poverty and injustice are magnifying the crisis in underresourced countries.

More than 36 million people are infected with HIV/AIDS-the vast majority of them in the poor world, or in poor and marginalized communities within wealthy countries. And since AIDS was first recognized in the early 1980s, 13 million children have been orphaned and 22 million people have died from the disease.

Irwin and Millen, co-authors of the critically praised Dying for Growth: Global Inequality and the Health of the Poor, demonstrate that it is morally imperative and practically feasible to control the spread of AIDS by overturning common myths about treatment and prevention.

For example, it is often argued that ordinary citizens in rich countries can do little to fight AIDS in poor counties. But Irwin and Millen show how individual activists, students, health providers, and members of international health organizations have helped to play pivotal roles in lowering drug prices and securing increased funding for vaccine development. Activism and education by groups like ACT UP, Student Global AIDS Campaign, and various religious organizations is forcing national and international leaders to take greater responsibility for the global AIDS crisis.

Features a comprehensive resource guide. Illustrated with photographs.Alexander Irwin is an assistant professor of religious studies at Amherst College. Joyce Millen is Director of Research for the Institute for Health and Social Justice. Irwin and Millen are co-authors of Dying for Growth: Global Inequality and the Health of the Poor. James Orbinski, president of Doctors Without Borders, called Dying for Growth "deeply intelligent, thoroughly researched-a must-read for all citizens and activists committed to meaningful change."

Latino Gay Men and HIV: Culture, Sexuality, and Risk Behavior

Rafael M. Diaz

Latino Gay Men and HIV: Culture, Sexuality, and Risk Behavior Rafael M. Diaz Amazon Price: $26.05
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By: Routledge
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Total reviews: 2 Average rating: 3.0 of 5

Editorial Review:

Over the past 10 years, AIDS educators have consistently had one truth driven home to them: it is impossible to talk about HIV, AIDS, and safe sex without talking about how people live their lives. This is the message that resonates through Rafael M. Diaz's Latino Gay Men and HIV. Diaz, trained as a social worker, is a Professor of Medicine at University of California, San Francisco, and has created a panoramic portrait of the wide range of issues that Latino gay men deal with in making decisions about safe sex. Discussing issues of poverty, class, ethnicity, and gender as well as concepts of "manliness" in Latin culture, Diaz supplies us with some steps that might be taken to help stop the spread of AIDS among Latino men. Perhaps more important, his writing conveys an insightful, nuanced portrait of gay Latino men's lives. Perceptive, intelligent, and sensitively written, Latino Gay Men and HIV is an important addition to AIDS literature and to the growing body of work that examines the diversity of gay life and culture.

Breaking the Conspiracy of Silence: Christian Churches and the Global AIDS Crisis

Donald E. Messer

Breaking the Conspiracy of Silence: Christian Churches and the Global AIDS Crisis Donald E. Messer Amazon Price: $10.20
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Total reviews: 2 Average rating: 4.0 of 5

Editorial Review:

More than twenty years into the global AIDS pandemic, the efforts of Christian congregations and denominations have been less than minimal. This book is aimed to awaken Christian compassion in the coming years to this fathomless tragedy.

The worst health crisis in the world in 700 years, global HIV/AIDS epidemic is overwhelming in scale: 40 million people are infected worldwide (75% of them in Africa); 7000 people die daily; each day 1600 persons are infected. Some 26 million people have already died.

''At this unprecedented kairos moment in human history,'' says Messer, ''God is calling the church to a new mission and ministry.'' Drawing on his own involvement in global AIDS education in Asia, Latin America, and Africa, Messer uses stories, basic factual information, and theological insights to motivate lay and clerical Christians to assume leadership and form partnerships with Christians around the world in this struggle. Just as individuals must change their behavior to prevent and eliminate AIDS, so must congregations and church leaders. Compassion, not condemnation, is desperately needed, says Messer. But financial resources for education and prevention programs are also urgently required from churches. Messer shows how churches can partner with ecumenical organizations, relief agencies, volunteer mission programs, healthcare programs, and other agencies to engage global AIDS directly and effectively.

AIDS in the Twenty-First Century, Fully Revised and Updated Edition: Disease and Globalization

Tony Barnett, Alan Whiteside

AIDS in the Twenty-First Century, Fully Revised and Updated Edition: Disease and Globalization Tony Barnett, Alan Whiteside Amazon Price: $24.25
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Customer Reviews:
Total reviews: 2 Average rating: 5.0 of 5

A rare focus on the social and economic context 5 out of 5 stars.
9 of 10 people found this review helpful.

This is the only book-length exploration of the social and economic context of the the HIV/AIDS epidemics. What comes through is that the authors are not journalists who dashed off a book on AIDS, but longtime researchers, with world-ranging experience.

WHile well documented, it is readable. The next college level course I teach on contemporary issues will surely include this as required reading. My students will thank me for it.

The best comprehensive treatment of HIV/AIDS 5 out of 5 stars.
7 of 7 people found this review helpful.

Tony Barnett and Alan Whieside have done a fantastic job of placing the issue of HIV/AIDS within a comprehensive context. It is easy to read, well researched, thoughtful in it's analysis, and comprehensive - that is, it places the pandemic amidst the global forces that are affecting it and which must be understood if we're to successfully turn the tide. I am recommending it to many of my colleagues! It is the best book I have read to-date on the most challenging crisis facing the human family.

Editorial Review:

First published in 2002, AIDS in the Twenty-First Century met with widespread praise from researchers and policy makers. This edition is fully revised to take account of the latest facts and developments in the field. All statistics and evidence have been updated and their meanings reconsidered. Latest developments in vaccines, anti-retroviral treatments and microbicides are discussed along with information about the President's Emergency Plan for AIDS Relief and The Global Fund to Fight AIDS, Tuberculosis and Malaria.

AIDS in America

Susan Hunter

AIDS in America Susan Hunter Amazon Price: $14.93
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Emerging AIDS Pandemic Given Necessary Spotlight in Highly Personalized Book 5 out of 5 stars.
11 of 11 people found this review helpful.

Even with the majesty of the recent HBO production of Tony Kushner's "Angels in America" still fresh in our collective psyches, it is astounding how this plague continues to spread unabated. In fact, it seems to be going undercover yet again at a time when a new surge of HIV is most definitively on its way. The palpable danger of HIV/AIDS comes to searing life in medical anthropologist Susan Hunter's blistering book, the third she has tackled on this subject (the first two dealing with the AIDS epidemics in Africa and Asia). While she can get somewhat didactic, her points are well supported, the most significant being that our social, political, and economic systems have been deeply compromised by fundamentalist Christian doctrine.

The statistics are shocking yet inevitable once it becomes clear how half-hearted efforts have been to thwart the disease. According to the Center for Disease Control, between 2002 and 2003, the U.S. experienced a surge in new HIV infections and crossed the million milestone in 2005. Yet, it's the human face that Hunter brings to AIDS that makes her book resonate as deeply as it does. She has developed a heartbreaking narrative primarily derived from extensive interviews she held with Tom and Paige Swanberg of Billings, Montana and their families. Through Tom's infection, they become the vehicle by which we recognize the intractable connection points among the various religious, political, economic, and social forces that have actually increased the number of AIDS cases here.

While the personal impact of the Swanbergs highlights both strengths and weaknesses in character that Hunter documents in moving detail, there is also the not-so-startling revelation of an enormous and fatally flawed political system and medial infrastructure dictated by ignorance and presumptive thinking. The exploitation of the epidemic has been sadly seen by some as an excuse to manifest their greed and allow the public to live in fantasy about the current state of disease. What has resulted is a shift in the chief demographic of HIV/AIDS from an exclusively male populace toward the perceived fringes, specifically teenagers who are too young to know about the first outbreak in the 1980's and aging baby boomers who think they are part of a pre-AIDS generation. In fact, one of the most poignant stories in the book is about Susan Howe, a sixty-year-old Pittsburgh activist infected ten years ago in a brutal rape.

As always, there is the prevalent perception that AIDS is the disease of gays and addicts, and the government is more than willing to support this misconception to support their own agenda. The newest victims, according to Hunter, have been deliberately provided with misinformation, and once infected, they become promptly ignored by the system that s supposed to help them. Tom's story, in particular, is a much-needed wake-up call about the importance of discriminating behavior and self-protection.

Hunter does provide hope through examples found in other parts of the world, specifically Brazil's efforts to arrest the spread of AIDS worldwide. In deciding to provide medical treatment for all those infected with HIV, Brazil apparently prevented at least half of the new infections projected for 2002. This was done at a cost of less than $100 million spent on producing free AIDS drugs from 1997 to 2001 and translated into a savings of $1 billion in medical costs. The author leaves the reader a sense of hope even within a seemingly insurmountable barrier against political mobilization. Her book provides an indispensable light into a long, dark tunnel.

Editorial Review:

With more than one million people currently infected and half a million already dead, the U.S. ranks among the top ten most severe AIDS epidemics in the world. Americans should know more about the current state of the epidemic so they can protect themselves and demand that the government act responsibly to reduce the danger of HIV in this country. Hunter exposes the ways in which the U.S. shamefully resembles a developing country, and the many fronts on which the government has failed to control the spread of the disease. In this startling book, she also shows what we must do to change the future of AIDS.

Troubling The Angels: Women Living With Hiv/aids

Patricia A Lather, Christine S Smithies

Troubling The Angels: Women Living With Hiv/aids Patricia A Lather, Christine S Smithies Amazon Price: $31.50
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Editorial Review:

Educator Patti Lather and psychologist Chris Smithies observed and chronicled support groups for women diagnosed with HIV. Whether black, Latina, poor, or middle class, the women in these groups share the common bond of living with HIV/AIDS, and they describe how it affects their lives in terms full of practical reality and moving poignancy, as they fight the disease, accept, reflect, live, and die with and in it.The authors weave into these accounts their own experiences as researchers, but also as women emotionally tied to the sufferings of sisters, mothers, wives, and lovers with HIV/AIDS.Finally, the reader is provided with statistics and fact boxes that put these women’s words in context for a fuller understanding of the epidemic of HIV/AIDS as it affects its fastest growing population. In an epilogue, Lather and Smithies revisit these women in 1995 and 1996, not only to once again chronicle their lives with HIV/AIDS, but to visit the friends they had made and to mourn the friends they have lost.

Not In My Family: AIDS in the African American Community

Gil L. Robertson

Not In My Family: AIDS in the African American Community Gil L. Robertson Amazon Price: $12.80
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Total reviews: 6 Average rating: 5.0 of 5

Editorial Review:


At long last, the time has come: the time for African American people to face the scourge that has affected it disproportionately for years, and to break through the cultural inhibitions that have prevented them from dealing with it head on. This landmark collection of personal essays, stories, brief memoirs, and polemics from a broad swath of black Americans-whether prominent figures from the worlds of politics, entertainment, or sports, or just ordinary folks with extraordinary -stories whose lives have been touched by HIV/AIDS-will galvanize public attention around this issue.


Author and journalist Gil Robertson first conceived this "gripping and heartfelt patchwork," as he calls it, when his older brother was diagnosed with HIV. As he writes in his introduction, "As I've watched my family move through the various stages of his illness and hear similar stories from others, I began to realize that my family was not alone. There are countless other families waging the same fight with this disease, and I wanted to connect with them so we would feel even more so empowered to wage battle."


Robertson has enlisted a remarkable group of contributors to give voice to their impassioned thoughts and feelings. A partial list includes: from politics, Rep. Jesse Jackson Jr., former US Surgeon General Joycelyn Elders and Al Sharpton; from music, Patti LaBelle; from film and TV, Mo'Nique, Jasmine Guy, Hill Harper, and Sheryl Lee Ralph; and from letters, Randall Robinson and Omar Tyree-among many, many others.

Political Economy of AIDS in Africa (Global Health)

Political Economy of AIDS in Africa (Global Health) Amazon Price: $44.75
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Editorial Review:

Sub-Saharan Africa is a region devastated by HIV/AIDS. The extent of the epidemic is only now becoming clear, as increasing numbers of people with HIV are becoming ill. In the absence of massively expanded prevention, treatment and care efforts, the AIDS death toll on the continent is set to escalate rapidly. Despite progress being achieved in localized settings, the alarming statistics reflect the continuing failure of advanced countries to mount a response that matches the scale and severity of the African HIV/AIDS crisis.

Over and above the colossal personal suffering, the dire social and economic consequences for fragile nation-states are already being felt, not only in health but in education, industry, agriculture, transport, human resources and economies in general. Countries already crippled by drought, poverty, debt, forced migration and civil war must now contend with massive deterioration in child survival rates and life expectancy, the erosion of the economic family base, massive and insupportable demands on health and public services, chronic labour shortages and volatile national security.

Through a critical and detailed exploration of specific case studies, this invaluable volume brings together an unparalleled array of international contributors to redefine the political and economic contours of this calamitous epidemic. It examines the impact of the shortfalls in the 'Global Fund' allocation, the slow pace of administrative processing of aid and the weaknesses of institutional responses to the crisis from African countries and their partners in the global health community. It is essential reading for all concerned with public health, epidemiology, HIV/AIDS research, globalization, development, Africa and indeed our shared future.

Features include: — Unique assessments of HIV/AIDS and its impact on democracy and governance in African states — Wide-ranging regional and country studies by the foremost thinkers in their fields — Multi-disciplinary contributions from areas including: Politics, Sociology, Public Health and Development Studies — Compelling and convincing evidence, thematic in approach — Innovative and culturally specific insights for long-term planning, care and support


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