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The Comfort of Home: A Complete Guide for Caregivers (Comfort of Home, The)

Maria M. Meyer, Paula Derr

The Comfort of Home: A Complete Guide for Caregivers (Comfort of Home, The) Maria M. Meyer, Paula Derr Amazon Price: $16.47
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Customer Reviews:
Total reviews: 2 Average rating: 5.0 of 5

Packed full of information 5 out of 5 stars.
5 of 5 people found this review helpful.

Reviewed by Cherie Fisher for Reader Views (8/07)

I was really impressed with the comprehensive material in this 3rd edition of "The Comfort of Home." As a Social Worker in a previous life, this would have been the book that I would have given to individuals who were considering becoming a primary caregiver. Nothing has been left out in this very well-written guide that a person needs to consider when undertaking this process.

"The Comfort of Home" is set up so that it can be read from beginning to end, or as a reference guide that a person can look up specifics. Oftentimes, taking on the task of a caregiver seems completely overwhelming. Meyer helps break the tasks down into manageable steps that include tips, questions that need to be asked and additional resources to follow up with. The author begins the book by helping the reader decide if home care is an option for them to consider. Her approach is honest and guilt-free for the person making this decision. Following this process, a person needs to decide what level of care is needed and whether this can be provided at home. I really thought that the section on paying for care through Medicare, Medicare part D, Medigap and the many other types of benefits was easy to follow.

As a proponent of long-term planning, I especially liked the section for setting up a care plan. Following these suggestions will make it easy to have someone step in as a temporary caregiver to give the primary caregiver a break, reporting to medical staff and in helping the caregiver not to make mistakes. Being a caregiver can be exhausting and keeping records on the patient, especially with important medication schedules. There are so many chapters that cover every aspect of a person's life such as exercise, diet, nutrition, special challenges and daily activities. Each area is thoughtfully addressed and ends with other available resources in dealing with that area.

The author does an excellent job throughout "The Comfort of Home" in reminding the caregiver to take care of themselves. She even includes a whole section on how to avoid burnout and ends with dealing with funeral arrangements and the grieving process. I would highly recommend this guide to anyone who is considering becoming a caregiver.

Editorial Review:

Burnout — the complete drain of physical, spiritual, and emotional reserves — occurs when a caregiver slips into exhaustion or depression. More and more frequently, the responsibility of caring for the chronically ill child, the disabled spouse, or the aging parent falls on a family member. From the decision to be a caregiver to dealing with day-to-day activities, this guide provides help with every aspect of home care. Also included in this edition are a checklist of tasks, a chapter on self-care and avoiding caregiver burnout, a glossary, and list of helpful resources.

Lean on Me: Ten Powerful Steps to Moving Beyond Your Diagnosis and Taking Back Your Life

Nancy Davis

Lean on Me: Ten Powerful Steps to Moving Beyond Your Diagnosis and Taking Back Your Life Nancy Davis Amazon Price: $7.99
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By: Fireside
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Customer Reviews:
Total reviews: 21 Average rating: 4.0 of 5

Editorial Review:

"The prognosis you give yourself is the only one that's important. You can't allow yourself to become the victim of a negative prognosis. At the young age of thirty-three, Nancy Davis was diagnosed with multiple sclerosis. The finality of the neurologist's prognosis was devastating: ""There is nothing you can do. Go home and go to bed...forever."" Nancy left her doctor's office in shock and despair. How could it be that within a year she would be confined to her bed, at best able to push the buttons on her television's remote control? She had plans. She had a family. She had a life that she desperately wanted to live. Nancy made a choice. Rather than accepting this hopeless prognosis, she began to educate herself, to create an effective health regimen, and to expand her range of therapeutic options. She literally reinvented her prognosis and in doing so she created a healthy new life. Lean on Me couples Nancy's deeply personal story with a step-by-step guide to empower anyone to take charge of his or her own health care in the face of any life-threatening disease: Step One Embrace Change Step Two Fear Less Step Three Never Take No for an Answer Step Four Find Your Dr. Right Step Five Build Your Health Team Step Six You Are What You Ingest Step Seven Let's Get Physical Step Eight Explore Alternative Therapies Step Nine Tame the Health Care Monster Step Ten Give Back Life-altering diseases often come with a list of ""can'ts,"" ""won'ts,"" and ""no's."" Nancy teaches readers how to move beyond these negative concepts and focus on what they personally can and will do to improve their health. Each of these steps offers readers the strategies and strength to carry on when they're feeling overwhelmed, and the concrete tools for actively seeking and receiving the best treatment. Lean on Me is the health advocate that each of us needs to adopt in the face of a medical crisis. It is a book that shows how to navigate the health care waters, to find hope, to take positive action, and to celebrate progress -- all kinds, every day. It provides the knowledge and power to make good choices. It supplies the authoritative information that can enable you to save your life or the life of a loved one. "

Speedbumps: Flooring It Through Hollywood

Speedbumps: Flooring It Through Hollywood List Price: $29.95
By: Penguin Audio
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Customer Reviews:
Total reviews: 26 Average rating: 4.5 of 5

Very Enjoyable 5 out of 5 stars.
4 of 4 people found this review helpful.

Having seen many of Teri's movies I found her point of view very interesting. In retrospect she has really worked with some of Hollywood's heavy hitters. This was a very lighthearted look back on her career with funny stories about a wide range of a variety of celebrities. What suprised me most was her honesty about her insecurities about being an actress and how MS plays a role in all of this. Overall a very enjoyable read.

The classy Teri Garr 5 out of 5 stars.
2 of 2 people found this review helpful.

Teri Garr is the type of person who you wish you knew personally. She is so down to earth in a celebrity world that is full of over prententious egos. I have enjoyed her movie roles and the interchanges that she had with David Letterman on his show were classic. The book is an entertaining look into life that demonstrated her tenaciousness to get what she wanted while keeping a wonderful sense of humor. She takes those two qualities with her as she fights multiple sclerosis. We all should have her attitude regarding the challenges that we face in life.

Editorial Review:

At once laugh-out-loud funny and remarkably down-to-earth, the popular Oscar-nominated actress muses about movies, men, motherhood, and MS in a book that is both Hollywood hilarious and personally moving.

Abridged CDs - 5 CDs, 6 hours

Multiple Sclerosis: The Guide to Treatment and Management

Chris H. Polman

Multiple Sclerosis: The Guide to Treatment and Management Chris H. Polman Amazon Price: $18.21
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Customer Reviews:
Total reviews: 3 Average rating: 4.5 of 5

Editorial Review:

This completely revised edition of the best-selling Multiple Sclerosis: The Guide to Treatment and Management is a comprehensive, accessible guide to the present therapeutic options and their efficacy. Special features include expert opinion statements for each MS therapy; a unique guide to the wide diversity of therapeutic options available; a thorough discussion of the usefulness, effectiveness, and side effects of individual treatments; a new chapter on unconventional therapies; and a detailed guide to further reading.
This compendium of the most frequently used treatments for multiple sclerosis is an authoritative reference for all physicians and a factual guide for patients who need information about therapies. For reader accessibility, the book is organized into sections dealing with the treatment of acute exacerbations, disease-modifying therapies, symptom management, and alternative therapies. Each chapter in the new edition concludes with references, especially useful for readers who want more information about the therapies discussed.

Waist-High in the World: A Life Among the Nondisabled

Nancy Mairs

Waist-High in the World: A Life Among the Nondisabled Nancy Mairs Amazon Price: $10.88
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By: Beacon Press
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Customer Reviews:
Total reviews: 6 Average rating: 5.0 of 5

Devastating honesty 5 out of 5 stars.
31 of 31 people found this review helpful.

Reviewer: robert dorroh from Sonora, CA United States Nancy Mairs, with devastating honesty, chronicles life as a cripple (her choice of word) in poignant essays in "Waist High in the World."

Beset with multiple sclerosis and bouts with clinical and situational depression, she offsets these stumbling blocks with joy, candor, eloquence, and cultural and political insights. It is a book for everybody, not just the disabled, for it challenges our fears, cultural hangups and citizenship: "The more perspectives that can be brought to bear on human experience, even from the slant of a wheelchair or a hospital bed, or through the ears of a blind person or the fingers of someone who is deaf, the richer that experience becomes." She attacks the stereotype that cripples must be passive and unfailingly polite in a culture that doesn't want to deal with them: "Beyond cheerfulness and patience, people don't expect much of a cripple's character."

Pondering her husband and caretaker George's battle with cancer, she offers a balanced look at suicide in the face of his death. Though she has attempted suicide "more than once," she questions the right-to-die movement, which extolls "rational" suicide: "Since hopelessness is a distinctive symptom of depression, which is an emotional disorder, actions carried out in a despairing state seem to me intrinsically irrational. This last time I clung to shreds of reason, which saved me." Still, she sees suicide as a possibility: "I want to be the one in charge of my life, including its end."

Why should society pay for the misfortunes of others? people ask. Because it's what human beings do: take care of one another, Mairs says, adding that it's the government's role to ensure that its citizens are entitled to the pursuit of happiness. Mairs notes that the abled-bodied should aim to preserve the dignity of the disabled. This takes in seeing them as sexual beings: ... "The general assumption, even among those who might be expected to know better, is that people with disabilities are out of the sexual running."

As a paraplegic, I admire her advocacy on my behalf. I admire her more, however, for her willingness to work toward the betterment of our society through a rare and gifted intelligence.

Editorial Review:

A Life Among the Nondisabled

In a blend of intimate memoir and passionate advocacy, Nancy Mairs takes on the subject woven through all her writing: disability and its effect on life, work, and spirit.

Women Living with Multiple Sclerosis: Conversations on Living, Laughing and Coping

Women Living with Multiple Sclerosis: Conversations on Living, Laughing and Coping Amazon Price: $10.17
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Customer Reviews:
Total reviews: 43 Average rating: 4.0 of 5

Helps Family Understand 5 out of 5 stars.
2 of 2 people found this review helpful.

My daughter has multiple sclerosis and I try my best to be there to support her and help whenever I can. This book helped me understand much more fully what she's going through. It also helps me more fully understand my son-in-law's and grandchildren's deeper concerns too. It's hard to put all of it in words I am sure but the women in this book really gave me a "bigger" picture and deeper understanding. It helped me a lot. Their stories made me cry and yet there were many times that their remarkable humor made me laugh aloud. It's a great book. I'll be sharing it with many members of my family.

Editorial Review:

This is a unique guide for women dealing with the difficulties of multiple sclerosis. After she was diagnosed with Multiple Sclerosis in 1976, author Judith Lynn Nichols realized that people suffering from chronic illness fare better when they share experiences with people fighting the same disease. While researching MS on the Internet, she connected with a group of women fighting to live with MS. The group quickly became each woman's support network, and, in the daily emails compiled in this book, they offered each other wisdom and humor about everything this disorder affects: diagnosis, employment, spirituality, family reactions, sexuality, pain control, depression, and more.

Never Too Late (Dimension books)

Kathryn Kuhlman

Never Too Late (Dimension books) Kathryn Kuhlman List Price: $0.95
By: Bethany House Pub
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Customer Reviews:
Total reviews: 5 Average rating: 5.0 of 5

Never Too Late 5 out of 5 stars.
17 of 19 people found this review helpful.

"Never Too Late" is an inspiring story of a woman's struggle to know the 'ultimate' power (physical healing) of Jesus Christ. While we cannot fathom the power of God or understand why certain situations occur, God has a way of taking us through some valleys so that we may focus on Him and not our illness.

Never Too Late 5 out of 5 stars.
3 of 3 people found this review helpful.

I read it without stopping...great!
Received amazingly fast and in good shape.
Thank you,
Martha

An encouragment 5 out of 5 stars.
1 of 1 people found this review helpful.

I have gone back to previous moves of God to gain insight into the difficulties we are facing today. This book reminded me that God still heals and was an encouragement.

Editorial Review:

The stirring testimony of Marion Burgio, a middle-aged Catholic woman who developed an extremely debilitating form of multiple sclerosis. After countless operations and medical procedures, still unable to walk and nearly blind, Mrs. Burgio received a friend’s invitation to attend Kathryn Kuhlman’s Miracle Crusade. Read and find out the stunning course of events that followed! Features Miss Kuhlman’s teaching on those who are not healed.

A Dream Is a Wish Your Heart Makes: My Story

Annette Funicello

A Dream Is a Wish Your Heart Makes: My Story Annette Funicello Amazon Price: $12.75
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Customer Reviews:
Total reviews: 11 Average rating: 4.5 of 5

Fresh, lively writing and colorful anecdotes 4 out of 5 stars.
8 of 8 people found this review helpful.

Surprisingly absorbing and lively recollections from Annette Funicello, one-time Mouseketeer and Disney darling who was the only teen-mouse to graduate to the big screen via "Babes In Toyland" and the "Beach Party" and "Merlin Jones" comedies. Annette comes clean about being the only Mouseketeer kept on contract by Walt Disney after MMC ran its course, and she contemplates why that was and how her co-stars struggled without Disney's guidance. She is very upfront, but also a little indifferent to her own good fortune, embarrassed and innately shy about a career that just fell into her lap. She says she never aspired to fame, but got it regardless. The book continues its interesting narrative even after Annette marries and retires, cleaning the house the day she heard Walt Disney passed, and eventually realizing her marriage was out of gas. Fate dealt Annette (and all her fans) a bitter hand when she was diagnosed with MS, which she still continues to fight, but her inspiring conclusion to the book gives all of us hope.

Editorial Review:

The former Mouseketeer and star of beach party movies chronicles her career, offering recollections of Walt Disney, Frankie Avalon, and many others, and honestly discussing her recent struggle with multiple sclerosis. 75,000 first printing. ad/promo.

Fall Down Laughing: How Squiggy Caught Multiple Sclerosis and Didn't Tell Nobody

David Lander

Fall Down Laughing: How Squiggy Caught Multiple Sclerosis and Didn't Tell Nobody David Lander List Price: $22.95
By: Tarcher
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Customer Reviews:
Total reviews: 18 Average rating: 5.0 of 5

Editorial Review:

In the summer of 1999, David Lander revealed publicly that he suffers from multiple sclerosis-a secret he'd kept for fifteen years even while living and working in Hollywood's celebrity fishbowl. Diagnosed with the illness after filming the last episode of Laverne and Shirley, Lander continued to develop his film and television career while hiding his illness. His success was an astonishing testament to his physical and emotional strength and his determination to prove that those with M.S. can still enjoy fulfilling and challenging lives.

Fall Down, Laughing is the humorous and poignant story of Lander's courageous struggle with multiple sclerosis. Over the years, Lander tried everything to improve his condition: exercise programs, alternative medicine, support groups, the latest crop of designer drugs. Weaving his experiences against a backdrop of entertaining celebrity anecdotes, Lander offers a message of affirmation that will provide information and hope to millions of M.S. sufferers, their friends and caregivers.

Multiple Sclerosis: A Guide for the Newly Diagnosed

Nancy J. Holland, T. Jock Murray, Stephen C. Reingold

Multiple Sclerosis: A Guide for the Newly Diagnosed Nancy J. Holland, T. Jock Murray, Stephen C. Reingold Amazon Price: $13.57
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Customer Reviews:
Total reviews: 6 Average rating: 4.5 of 5

Up-to-date and in-depth 5 out of 5 stars.
15 of 15 people found this review helpful.

With my wife's recent diagnosis of Multiple Sclerosis (MS), I found myself scrambling around, looking for resources. This book is an excellent resource, one that is well worth consulting first! This second edition was published in 2002, and written by three prominent physicians specializing in MS, which means that it is up-to-date and in-depth.

There are nine chapters in this book. Chapter one explains what MS is and how it is diagnosed. Chapter two looks at the potential causes of MS. Chapter three is an excellent look at the treatments currently available. Chapter four contains practical advice on living with MS, while chapter five gives advice on coping with the disease, and chapter six discuses employment issues. Chapter seven is a hope-bringing chapter on current research into MS, while chapter eight discuses clinical trials. And finally, chapter nine is a short discussion on what your Multiple Sclerosis Society can do for you.

As a person caught up in the life of a Multiple Sclerosis sufferer, I must say that I found this book to be an excellent resource. I highly recommend this to those newly diagnosed, and to their loved ones.

Editorial Review:

Written specifically for those newly diagnosed with multiple sclerosis, as well as family and friends, this essential reference companion serves as a learning guide to the disease. The book discusses the nature of multiple sclerosis, its impact on daily life, guidelines for dealing with all aspects of the disease, and new advances in clinical management that make it possible for MS patients to live full and productive lives. Rounding out this invaluable resource are a glossary, list of additional resources, and suggestions for further reading.

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