Rheumatic Diseases Books - Page 6

Lupus (Diseases and Disorders)

Melissa Abramovitz

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Coping with Lupus (Coping with Chronic Conditions: Guides to Living with Chronic Illnesses for You & Your Family)

Robert H. Phillips

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Customer Reviews:
Total reviews: 5 Average rating: 4.0 of 5

great book 5 out of 5 stars.
10 of 10 people found this review helpful.

I read this book years ago when I was first diagnosed with lupus and found it to be very informative and helpful. It is written in such a manner that it isn't dry or boring. It gives you all the information you need to know and also makes you laugh and gives you hope. I would highly recommend this book for anyone who is newly diagnosed or knows someone with lupus. It's quick and easy reading.

Not enough helpful hints for coping 3 out of 5 stars.
8 of 8 people found this review helpful.

The person with lupus must struggle with strong and conflicting emotions while trying to maintain as normal a life as possible despite pain, disability, and changes in personal relationships. This book attempts to offer ideas for dealing with these problems.

Unfortunately, this book sometimes glosses over the difficulties the person with lupus faces. There are some helpful hints in it; but often, the author spends far more space describing a problem than offering solutions for solving it. For example, here is the complete advice for people worried about no longer being able to work: "Talk to people. Speak to others with lupus who cannot work. Find out what they are doing to cope. Maybe you'll get some ideas that will help you conquer this fear."

When the author does provide hints for coping, he often doesn't go into much detail. For example, the section on using relaxation techniques to combat pain contains just four sentences. It mentions meditation, autogenic training, hypnosis, and deep breathing, but it does not even define them, let alone give instructions for any of them or tell you where to find out more information.

There are no easy answers for the obstacles people with lupus face each day; still, the reader would have been better served if the author had spent less time "feeling the reader's pain" and more time helping her solve it.

Editorial Review:

In this new book, Dr. Phillips offers sound, meaningful, compassionate advice to those individuals who must deal with lupus. Coping with Lupus effectively explains the strategies and techniques that can greatly improve the quality of life for lupus patients and their families.

Living with Sjogrens Syndrome

Sue Dyson

List Price: $16.50 By: Sheldon Press Amazon Marketplace: 7 new & used starting at $11.93

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Editorial Review:

Practical advise on how to cope with one of the most common rheumatic-type auto-immune diseases. Sjogrens syndrome (pronounced show-grens) is the most common rheumatic-type auto-immune disease after rheumatoid arthritis, affecting up to half a million people in the UK. The most common symptoms include dry eyes and dry mouth, joint and muscle pain, thrush, difficulty in swallowing, fatigue and depression. Frequently people with Sjogrens syndrome suffer from anther auto-immune disease such as lupus or rheumatoid arthritis. This book covers: Diagnosis; How Sjogrens affects the body; Treatments; Exercise; Self-help; Coping with pain; Pregnancy; Relationships; Practical and financial help

My Adventure With Lupus: Living With a Chronic Illness

Robert L. Yocum

List Price: $12.95 By: Griffin Publishing Group Amazon Marketplace: 14 new & used starting at $0.18

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Editorial Review:

Lupus is a chronic debilitating disease that inflames connective tissue in any part of the body. Most commonly it affects the joints and muscles skin blood vessels and membranes surrounding the lungs and heart. There is no cure. Living with this condition is not easy-but nei ther is it impossible. Lupus patient Robert Yocum makes that clear in this account of his own experiences with the disease. Readers will learn about the origin and development of Lupus along with strategies for minimizing its effect upon daily life. Yocum explains how to pace physical activities communicate your needs to others and deal with the wide emotional swings which often occur with Lupus.

Portraits of Success

Barbara De Witt

List Price: $19.95 By: Lupus International Amazon Marketplace: 10 new & used starting at $5.00

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Customer Reviews:
Total reviews: 1 Average rating: 5.0 of 5

Well written book! 5 out of 5 stars.
1 of 1 people found this review helpful.

I own this book and have found the stories inside to be quite inspirational. Living with someone who has Lupus can be very trying at times but this book reminds me of the struggles that these very brave people encounter on a daily basis and how they have triumphed as well. I enjoy reading about their successes and can learn from them myself. Well worth reading and a very simple read. Not complicated at all.

Editorial Review:

This book includes insights for living successfully with lupus and provides in depth information about the disease, treatment, tests and coping skills.

Lupus: the Facts

Graham Hughes

List Price: $19.95 By: Oxford University Press, USA Amazon Marketplace: 13 new & used starting at $0.67

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Customer Reviews:
Total reviews: 2 Average rating: 3.5 of 5

Editorial Review:

Though one of the lesser known illnesses, Lupus affects an enormous number of people worldwide (there are 1 million sufferers in the USA alone), and is far more prevalent than many better known illnesses (such as MS and leukaemia). Lupus is a disease of the immune system, resulting from the over-production of antibodies. Typical first symptoms include skin rashes, hair loss, joint swellings, fever; however, it can then go on to start affecting major organs, particularly the kidneys, with a resulting risk to life. It is a disease that predominantly affects young women (between fifteen and forty). In spite of its high incidence, little has been written for the sufferer. Fortunately, the options for the Lupus sufferer have improved markedly in recent years, with the advent of self-help groups, and improved drug treatments. The long-term prognosis is therefore far more favourable now than it has been in the past. As head of the Lupus Research Unit at St Thomas' Hospital, and life president of Lupus UK, Graham Hughes has an unsurpassed knowledge of Lupus. From a world-wide authority on the subject, Lupus: The FACTS provides the sufferer with the information they need, on a range of issues, such as diagnosis, treatment, pregnancy, and diet. Drawn from his years of experience treating patients, Dr Hughes provides the sufferer, and their family and friends, with concise, readable, information on the illness, with a book that emphasises the immense positive contribution that they can make to improve their situation.

A Journey Towards Health ... Reversing Scleroderma

Jane M. Parker, Victor Dyment

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Customer Reviews:
Total reviews: 3 Average rating: 1.5 of 5

Editorial Review:

Answers do exist for seemingly incurable diseases. The information contained in this book applies to a diverse variety of conditions ranging from ADD, Autism, Scleroderma, and MS to psoriasis and eczema. We all have the ability to reach good health by changing to the correct materials such as dental, clothing and furniture.

This book follows Jane Parker's journey from the diagnosis of systemic Scleroderma, a fatal autoimmune disease, to good health. After a year of unanswered questions, numerous doctors and alternative practitioners, she finally received a correct diagnosis of Scleroderma. In researching the disease she found there was no known way to cure it.

All existing information held no hope for survival – and definitely none for a reversal, but this didn't stop her search to cure this deadly disease. She tried many different approaches, from conventional medicine to alternative therapies with no apparent results or answers to her problems.

She finally found the answer through Victor Dyment, a Russian healer/scientist who has been doing research into the effects of different materials on health. Victor found the answers that can help reverse many diseases, not only Scleroderma. Under Victor's guidance she is the first one who has completely reversed this irreversible condition.

This book describes the many steps Jane took, including the failures as well as the triumphs, in her struggle to overcome this deadly disease.

This book follows Victor's research from its beginnings in Russia to the development of his Health Frequency theory and the effects of materials on our health.

With the increasing awareness of environmental health hazards this book is vital for both children and adults.

By sharing these experiences and knowledge, we want to make your journey to health a lot shorter than Jane's.

TRAVELS WITH THE WOLF: A STORY OF CHRONIC ILLNESS (WOMEN & HEALTH C&S PERSPECTIVE)

MELISSA ANNE GOLDSTEIN

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Customer Reviews:
Total reviews: 3 Average rating: 4.5 of 5

Editorial Review:

The Lupus Foundation of America estimates that between .5 and 1.5 million peoplehave been diagnosed with lupus, a chronic autoimmune disease that can attack any part of the body. The elusive nature of the illness often becomes a source of overwhelming helplessness and frustration to its victims, their loved ones, and the physicians who treat it.

Narrated through both poetry and prose, Travels with the Wolf is an autobiographical account of Melissa Anne Goldsteins experiences with lupus. It is her story of becoming a young woman, writer, and teacher in the presence of severe, often debilitating disease. It is an exploration of her relationships with her family and friends as the illness steals into their lives, and the record of her struggle to maintain her independence and identity despite disease. Finally, it is an authors journey to find her spiritual core.

This book is not just about lupus. Goldstein uses her experience of the illness as well as sociological, literary, and historical research, to portray and understand the dilemmas faced by the chronically ill person in our society. In her conclusion, she calls for reform of todays health care system, which does not meet the needs of the chronically ill or their physicians.

TRAVELS WITH THE WOLF: A STORY OF CHRONIC ILLNESS (WOMEN & HEALTH C&S PERSPECTIVE)

MELISSA ANNE GOLDSTEIN

Amazon Price: $24.95 List Price: $24.95 Usually ships in 24 hours By: Ohio State University Press Amazon Marketplace: 19 new & used starting at $2.85

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Subjects -> Biographies & Memoirs -> Professionals & Academics -> Medical
Subjects -> Biographies & Memoirs -> Specific Groups -> Special Needs
Subjects -> Biographies & Memoirs -> Specific Groups -> Women

Customer Reviews:
Total reviews: 3 Average rating: 4.5 of 5

Editorial Review:

The Lupus Foundation of America estimates that between .5 and 1.5 million peoplehave been diagnosed with lupus, a chronic autoimmune disease that can attack any part of the body. The elusive nature of the illness often becomes a source of overwhelming helplessness and frustration to its victims, their loved ones, and the physicians who treat it.

Narrated through both poetry and prose, Travels with the Wolf is an autobiographical account of Melissa Anne Goldsteins experiences with lupus. It is her story of becoming a young woman, writer, and teacher in the presence of severe, often debilitating disease. It is an exploration of her relationships with her family and friends as the illness steals into their lives, and the record of her struggle to maintain her independence and identity despite disease. Finally, it is an authors journey to find her spiritual core.

This book is not just about lupus. Goldstein uses her experience of the illness as well as sociological, literary, and historical research, to portray and understand the dilemmas faced by the chronically ill person in our society. In her conclusion, she calls for reform of todays health care system, which does not meet the needs of the chronically ill or their physicians.