Hemophilia Books

The Curse of the Romanovs

Staton Rabin

Amazon Price: $13.13 List Price: $17.99 Usually ships in 24 hours By: Margaret K. McElderry Amazon Marketplace: 46 new & used starting at $7.95

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Subjects -> Children's Books -> History & Historical Fiction -> Fiction -> General AAS

Customer Reviews:
Total reviews: 3 Average rating: 4.5 of 5

Editorial Review:

Alexei Romanov, heir to the Russian throne, is in deadly danger.

It¹s 1916, the struggling Russian people are tired of war and are blaming their Romanov rulers for it, and some are secretly plotting to murder the young heir and his family. But nobody outside the palace knows that Alexei suffers from a terrible bleeding disease, hemophilia, which threatens to finish him off even before the family¹s enemies can. The only person able to help Alexei is the evil and powerful religious mystic Rasputin -- and now Rasputin is trying to kill him too! Desperate, Alexei flees through time to New York City in 2010, using a method taught to him by the mad monk himself.

In New York, Alexei meets smart and sassy Varda Rosenberg, and discovers she is a distant cousin. Varda is working on a gene therapy cure for hemophilia, as the disease still runs in the family. When Alexei learns that history shows that his entire family will be assassinated in 1918, he and Varda travel back in time to the Russian Revolution, with Rasputin hot on their heels. Will they be able to rescue Alexei¹s family before it¹s too late?

Staton Rabin lets Alexei tell his own riveting story in a rousing adventure with stunning surprises -- a movingly authentic look at royalty and revolution in the days of the tsars.

Hemophilia (Genes and Disease)

Michelle, Ph.d. Raabe

Amazon Price: $31.50 List Price: $35.00 Usually ships in 24 hours By: Chelsea House Publications Amazon Marketplace: 14 new & used starting at $21.20

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Editorial Review:

For many people, bumping into a chair or getting a paper cut means momentary pain, followed by quick healing. But for those with hemophilia, a disease that renders its sufferers unable to clot blood effectively and control hemorrhaging after minor injuries, the healing time can be much more arduous. Resulting from mutations in genes that code for blood proteins necessary for clotting, hemophilia is an ancient, hereditary disease that usually affects males and can be classified as severe, moderate, or mild. "Hemophilia", a detailed and easy-to-read guide filled with informative stories of the disease's history, strives to educate readers about the science of hemophilia, while emphasizing how people with this disease can live full and productive lives. The development and technology behind the evolution of treatments for hemophilia are also discussed.

Hemophilia (Genetic Diseases)

Jeri Freedman

Amazon Price: $29.25 List Price: $29.25 Usually ships in 24 hours By: Rosen Publishing Group Amazon Marketplace: 5 new & used starting at $16.00

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Hemophilia (Diseases and People)

Edward Willett

List Price: $26.60 By: Enslow Publishers Amazon Marketplace: 5 new & used starting at $14.00

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Codeine Diary: True Confessions of a Reckless Hemophiliac

Tom Andrews

List Price: $13.00 By: Harvest Books Amazon Marketplace: 22 new & used starting at $1.26

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Customer Reviews:
Total reviews: 4 Average rating: 5.0 of 5

Editorial Review:

When mathematician Tom Andrews slips and breaks his ankle on an icy Ann Arbor street, it is no ordinary fracture: for Andrews, a hemophiliac, the fall begins a "bleed"-that is, the pooling of blood beneath the skin that can cripple a hemophiliac. During his agonizing hospital-bound convalescence, he is doped up on codeine, a drug that sends him spiraling into reveries about his disease and the way he'd combated it with the seemingly self-destructive pursuits of his adolescence. Yet there was a family illness that overshadowed even his: his brother's terminal kidney disorder. In order to get his parents' attention, Andrews threw himself into breaking world records (for hand-clapping), motorcycle racing, competitive skateboarding, punk rocking, and other foolhardy pursuits that only emphasized for him how, in his parents' eyes, he would always be "the healthy son." Unfailingly strange and intense, unremittingly witty, Andrews's book is a memoir that transcends its subject and becomes the story of man's desire to inhabit the world fully no matter what the cost.

Go toward the Light

Chris Oyler

List Price: $4.50 By: Signet Amazon Marketplace: 14 new & used starting at $0.17

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Customer Reviews:
Total reviews: 3 Average rating: 5.0 of 5

incredible 5 out of 5 stars.
6 of 9 people found this review helpful.

This was a wonderful, vivid and moving story. It moved me to tears. It's one of the best books I have ever read.

His Spirit Remains 5 out of 5 stars.
0 of 0 people found this review helpful.

This Book has giving me the courage to keep going for we also have been hit with many driffrent deaths in are family My mom with cancer my little Brother is still Hanging on when he was born the Doctor said that he will not live but for a few months but he fooled them then they said he would never beable to feed him self .. but he did ... then they said that he would never learn to walk .. but he did.. Reading Chris Oyler story of Ben has giving me faith to keep hanging on watching the TV movie has also giving me the faith to know that when his time does come I will be there to hold his hand so he may cross to the other land .. I felt as if I was part of Chris Oyler family an still do they had the faith that most of us only wish we had but if you read another book this one should be it if you can get your hands on this Book please read it for you never know when your faith will be tested .. I keep this Book I keep the movie right upon my shelf an I watch it many times when I need a lift up in my faith learning about Ben an his family has made me say hey when I die I will meet Ben in Heaven I'm sure he will meet me after all I still talk to him in spirit.

Blood Brothers: Ryan, Chris, and Hemophilia

Nancy Shaw

List Price: $4.00 By: Star Books Amazon Marketplace: 4 new & used starting at $5.78

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Subjects -> Health, Mind & Body -> Personal Health -> Children's Health -> Hemophilia

Alexis: The Prince Who Had Hemophilia

By: Centeon Amazon Marketplace: 1 new & used starting at $5.00

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Editorial Review:

The true story of Alexis, youngest child of Russian Tsar Nicholas II, and how his hemophilia influenced events in Russia, ultimately leading to the Russian revolution. Recommend for ages 8 and older.

The Child With a Chronic Medical Problem-Cardiac Disorders, Diabetes, Hemophilia (National Children's Bureau Bibliographies, 3)

Rosemary Dinnage

List Price: $11.00 By: Chapman & Hall Amazon Marketplace: 1 new & used starting at $11.00

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Coagulation disorders: An entry from Thomson Gale's Gale Encyclopedia of Children's Health: Infancy through Adolescence

L. Culvert, Teresa, RN Norris

Amazon Price: $3.45 List Price: $3.45 Available for download now By: Thomson Gale

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Editorial Review:

Avoiding hard-to-understand medical jargon, the four-volume “Gale Encyclopedia of Children’s Health” uses language that parents can understand, while still providing enough depth to benefit today's health science students. The set provides in-depth coverage of pediatric diseases and disorders, along with issues related to physical and cognitive/behavioral development.