Down Syndrome Books - Page 6

Journey with Jeff: Inspiration for Caregivers of People with Special Needs

Sybil Reisch

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Customer Reviews:
Total reviews: 9 Average rating: 5.0 of 5

Heartfelt and honest book! 5 out of 5 stars.
2 of 2 people found this review helpful.

My friends in Rochester sent me this book after reading about it in their local Sunday paper. We are raising a 2-1/2, very spirited and loving son with DS and, although it's frustrating at times with the extra time needed for various therapies, dr. appts., etc., the joy he brings our lives far outweighs any of those frustrating moments. My friends thought they were sending me a book that would just be an enjoyable read. What they - and I - didn't realize is the impact it would have on my heart! The author tells it like it is and doesn't sugarcoat anything: her sense of loss after learning that Jeff had DS. The anger she felt with people who treated Jeff like a "non-person" ....and the love and appreciation for those who loved him as much as she did. Even the frustration she sometimes felt with the doctors and Jeff's limited abilities. And ALWAYS the joy and faith she had in the Lord and His never failing ability to confirm that He was in control. No matter how difficult things were, she always praised and thanked the Lord for confirmation that Jeff was serving a very important purpose on this Earth: to spread unconditional love to everyone he met. The book is easy to read yet has the ability to profoundly impact your life. Personally, it has helped me realize that I have spent the last 2-1/2 years believing that my son would be the "exception". And he very well may be; no one knows God's plans for our lives. But Sybil's book has helped me "ground" me in more realistic goals for his future and prepare me in case he isn't the exception. She is openly honest about the difficulties of raising a child with special needs and for that I am very grateful. I can only say "Thank you!" to Sybil for being so honest and open and for sharing her heart. I feel like I know her just by reading her story. The book is a "must read" for anyone with a young special needs child, especially if they haven't had much contact with other parents or support groups.

Editorial Review:

When Jeffrey Reisch was diagnosed with Down syndrome, his parents stumbled, but never lost their faith that God had chosen Jeffrey to spread His love and His word. Journey with Jeff: Inspiration for Caregivers of People with Special Needs by educator, author, and caregiver Sybil Y. Reisch speaks frankly of the heartache in equal measures of the joyful surprises of her twenty-seven year journey with her son. Along with her family and growing community support, she shares a poignant message of sorrow and celebration for caregivers and families of children and adults with special needs.

Down Syndrome (Perspectives on Diseases and Disorders)

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Children with Down Syndrome: A Developmental Perspective

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Editorial Review:

The underlying theme of this book is that children with Down syndrome, despite their constitutional anomalies and their additional medical problems, can be understood from a normative developmental framework. The contributions, all of which are based on the latest theories and research, demonstrate that the application of a developmental perspective to the study of young children with Down syndrome sheds light on the universality of ontogenetic sequences, stages, and structures, and highlights the respective roles of biological, perceptual-cognitive, linguistic, social, and emotional factors in the developmental process. Finally, it is shown that the application of a developmental perspective will suggest age and stage-appropriate interventions for Down syndrome children and their families. This will be a suitable book for psychologists, psychiatrists, special education teachers, pediatricians, and other medical researchers interested in Down syndrome and mental retardation, as well as graduate students in these areas.

Understanding Down Syndrome: An Introduction for Parents

Cliff Cunningham

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Customer Reviews:
Total reviews: 4 Average rating: 4.0 of 5

Understanding Down syndrome 4 out of 5 stars.
2 of 5 people found this review helpful.

I recently did a presentation for my biology class on Down syndrome. I found this book to be very helpful. It was very informative and offered much information. Some information of which was not found in other sources. This book offers a lot of information on Down syndrome, as well as what to expect from an individual with Down sydrome and how to care for them.

Editorial Review:

Highly acclaimed when first published, this book has become an accepted introductory work for professionals and new parents. The author, a leading authority on Down Syndrome, has updated and expanded his practical and sympathetic book to take account of recent advances in educational and developmental techniques and improvements in medical care. Besides information to help parents and practitioners understand the characteristics of the condition, this book covers the latest methods of treatment, advice on care of both the young child and the older person, the importance of -and sources for-professional guidance, and details of prenatal testing.

Teaching the Infant With Down Syndrome: A Guide for Parents and Professionals

Marci J. Hanson

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Customer Reviews:
Total reviews: 2 Average rating: 4.0 of 5

Helpful, but dry 3 out of 5 stars.
14 of 16 people found this review helpful.

This book comes highly recommended, and in fact provides a comprehensive curriculum for children age 0 - 24 months with DS with much helpful advice. However, the format is difficult to follow -- with a list of several unstructured activities at the beginning of each area and followed by a list of structured activities to help children reach goals, it seems like life is nothing but therapy! I recommend that if readers use this resource that they couple it with a good resource on play or activity based intervention, especially if you are a professional. Parents would probably do better with the Woodbine series (Fine, Gross, and Communication Skills for Children with Down Syndrome).

major resource 5 out of 5 stars.
1 of 4 people found this review helpful.

This book has been used by families throughout the world for a number of years. It provides helpful educational activities that can be performed by parents to aid their child's development. A classic in the field.

Editorial Review:

...written specifically for the parents of infants with down syndrome...consists of an extensively illustrated, step-by-step guide to recognizing and encouraging developmental milestones

Down's Syndrome (Need to know)

Kristina Routh

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Editorial Review:

Providing information that does not patronize, over-simplify or judge, this series examines social phenomena that are difficult or harmful. Each book traces the history, prevalence and consequences of such phenomena and offers ways of finding help for those involved or affected.

Parenting Your Complex Child: Become a Powerful Advocate for the Autistic, Down Syndrome, PDD, Bipolar, or Other Special-Needs Child

Peggy Lou Morgan

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Customer Reviews:
Total reviews: 6 Average rating: 5.0 of 5

Editorial Review:

Besides the usual parenting challenges, parents of disabled children face added obstacles that can tax the resolve and resources of even the strongest families. The author has developed a powerful system for obtaining dramatically better care for children with one or more serious disabilities. Parenting Your Complex Child reflects the experience and knowledge she has gained through decades of navigating a sea of complex medical, educational, occupational, and social issues while working with disabled clients and with her own son. Morgan's unique tracking and documentation tools let parents adapt to their child's challenges, create routines that support the child's needs, communicate those needs to busy professionals--and be taken seriously by them.

The book also helps parents lay the groundwork for care to continue after they themselves can no longer provide it. Compassionate, practical, and proven, Parenting Your Complex Child helps parents ensure that life-changing decisions are based on the best interests of the child--and on the best information available.

"This book is so much more than a list of suggested responses to particular behaviors. It's a detailed guide to understanding your child and building a place in the world for him or her from the ground up. Truly an amazing feat by any measure." -- from the Foreword by Kate Crow, MS, CGC, Genetic Counselor, Kaiser Permanente Genetics

"This is a thoughtful, thought-provoking, well-written and really helpful book. It will be of great interest, and of great value, to both parents and professionals. Well done!" -- Bernard Rimland, Ph.D., Director, Autism Research Institute; Founder, Autism Society of America

"Lots of good information in navigating the school systems and working with the medical community." -- Temple Grandin, Ph.D., author, Thinking In Pictures: and Other Reports from My Life with Autism

Mi Amigo Tiene el Sindrome de Down: My Friend Has Down Syndrome (Spanish-Language Edition) (Hablemos De Esto!/ Let's Talk About It!)

Jennifer Moore-Mallinos

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Editorial Review:

The sensitively written Let’s Talk About It Books encourage preschool-age and early-grades children to explore their feelings, deal with problems that trouble them, and understand others who have problems of their own. Each title speaks to a particular concern that children might encounter in the course of growing up. All books in this series have appealing color illustrations on every page, and are available in both English and Spanish language editions. Mi Amigo Tiene el Síndrome de Down is the Spanish language edition of My Friend Has Down Syndrome. A short section at the back of each book offers related advice to parents. My Friend Has Down Syndrome describes a condition that affects many families. Younger children are normally puzzled when they encounter other kids who suffer from Down Syndrome. Here is a heartwarming and reassuring story of how an ordinary child comes to understand and befriend another child who has Down Syndrome.

Down Syndrome (Genes and Disease)

F. Fay, Ph.D. Evans-Martin

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Editorial Review:

Down syndrome is a developmental disorder caused by the presence of an extra copy of chromosome 21. This extra genetic material causes changes in the production of various proteins, such as enzymes and cell adhesion molecules, which can disrupt metabolic pathways and cause defects in organ development. Modern medical advances and the development of early interventions have reduced the impact of Down syndrome, and as a result, individuals with Down syndrome can now live longer and have fewer physical and intellectual difficulties. "Down Syndrome" explains this genetic disease, its history and characteristics, and what scientists are doing to study it.

Discovery: Pathways to Better Speech for Children With Down Syndrome

Will Schermerhorn

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Editorial Review:

For children with Down syndrome, it is essential to lay the foundation for speech development as early as possible. To achieve the best possible results, the latest research shows that an integrated approach to speech development is most effective, including the combined use of spoken words with sign language and text, paying attention to hearing loss, and addressing intelligibility issues. Now, parents who are looking for information and guidance on their child's speech development have a new resource to rely on. This invaluable resource offers practical advice, examples, and expertise for parents and professionals to follow as they help children with Down syndrome from infancy to age seven become the best talkers they can be. The DVD covers the what, when, and how of speech development, including: Communication Milestones; Hearing Issues; Encouraging Speech; Making Speech Understandable (Intelligibility) When Talking Begins; Building Vocabulary and Grammar; Connection Between Reading and Speech. An international group of experts on speech development and Down syndrome appear on the DVD, including Dr.Libby Kumin, Professor Sue Buckley of the Down Syndrome Educational Trust, and physicians Sally Shott and Siegfried Pueschel. These and other experts discuss their methods and explain how to put them into practice. Additionally, the DVD features knowledgeable parents who comment on what techniques and approaches have worked best for their children. And children with Down syndrome also appear throughout the DVD, demonstrating the range of achievement that parents can expect. Approximately, the running time is 81 minutes.