Cystic Fibrosis Books

Recipes for the Specific Carbohydrate Diet: The Grain-Free, Lactose-Free, Sugar-Free Solution to IBD, Celiac Disease, Autism, Cystic Fibrosis, and Other Health Conditions (Healthy Living Cookbooks)

Raman Prasad

Amazon Price: $13.59 List Price: $19.99 Usually ships in 24 hours By: Fair Winds Press Amazon Marketplace: 28 new & used starting at $12.46

Buy at Amazon.com

Browse similar items by category:
Subjects -> Cooking, Food & Wine -> General
Subjects -> Cooking, Food & Wine -> Special Diet -> Healthy
Subjects -> Cooking, Food & Wine -> Special Diet -> Low Fat

Customer Reviews:
Total reviews: 27 Average rating: 5.0 of 5

Editorial Review:

The Specific Carbohydrate Diet is a strict grain-free, lactose-free, and sucrose-free dietary regimen intended for those suffering from Crohn's disease and ulcerative colitis (both forms of IBD), celiac disease, IBS, cystic fibrosis, and autism. It is based on the work of Elaine Gottschall, who wrote Breaking the Vicious Cycle, which introduces the SCD and explains the importance of eliminating certain carbohydrates in order to alleviate digestive ailments such as IBD, IBS, and celiac disease.

For those suffering from gastrointestinal illnesses, the Specific Carbohydrate Diet (SCD) offers a method for easing symptoms and pain, and ultimately regaining health. Recipes for the Specific Carbohydrate Diet(TM) offers a diverse and delicious collection of 150 SCD-friendly recipes, that includes over 80 dairy-free recipes. The easy-to-make and culturally diverse recipes featured in the book include breakfast dishes, appetizers, main dishes, and desserts such as -- Hazelnut-Vanilla Pancakes, Olive Sandwich Bread, Chicken Satay, Roasted Bass with Parsley Butter, Thin Crust Pizza, Gretel's Gingerbread Cookies, and Mango Ice Cream. It is accompanied by 40 full-color photos that will inspire you to get cooking again. In addition, personal anecdotes accompany each section of this book. You can find out more about this book on-line at www.scdrecipe.com/cookbook/.

Alex: The Life of a Child

Frank Deford

Amazon Price: $12.58 List Price: $13.98 Usually ships in 24 hours By: Thomas Nelson Amazon Marketplace: 27 new & used starting at $0.37

Buy at Amazon.com

Browse similar items by category:
Subjects -> Biographies & Memoirs -> Arts & Literature -> Authors
Subjects -> Biographies & Memoirs -> General
Subjects -> Biographies & Memoirs -> Professionals & Academics -> Medical

Customer Reviews:
Total reviews: 64 Average rating: 5.0 of 5

Editorial Review:

Alexandra Deford, a precious and precocious girl, was just eight years old when she died in 1980 following a battle against the debilitating effects of cystic fibrosis, the number-one genetic killer of children. Her poignant and uplifting story touched the hearts of millions when it was first published and then made into a memorable television movie. A new introduction contains information on the latest cystic fibrosis research, and a touching postcript reveals how the Deford family came to terms with the loss of Alex.

Whenever he speaks, sportswriter Frank Deford knows people will bring articles for him to sign. But what makes him happiest is when someone attends a sports-oriented lecture and brings a copy of Alex: The Life of a Child for him to sign. "Invariably, and happily, there's usually someone at each appearance who either brings that book or wants to talk about their connection to cystic fibrosis." Deford says. "It's tremendously gratifying to me. Rarely does a week go by that I don't get a letter about that book. People leave things at her grave. They really do. I have people tell me that she changed their lives. It's terribly dramatic, but they literally say that. I heard from a woman who became a pediatric nurse after reading the book. Hearing from people like that means more to me than anything."

The Power of Two: A Twin Triumph over Cystic Fibrosis

Isabel Stenzel Byrnes; Anabel Stenzel

Amazon Price: $19.77 List Price: $29.95 Usually ships in 24 hours By: University of Missouri Press Amazon Marketplace: 38 new & used starting at $11.71

Buy at Amazon.com

Browse similar items by category:
Subjects -> Biographies & Memoirs -> General
Subjects -> Biographies & Memoirs -> Specific Groups -> Special Needs
Subjects -> Biographies & Memoirs -> Memoirs

Customer Reviews:
Total reviews: 17 Average rating: 5.0 of 5

Amazing depiction of their interesting lives 5 out of 5 stars.
2 of 2 people found this review helpful.

I agree with what Tiffany wrote before me. I'm also an adult with CF, just hit 30. I had considered writing my own little CF memoir, but these girls did such an awesome job with their vivid depiction of their experiences, thoughts and emotions throughout their lives, they covered it all. Their journey brings you into the world of all stages of CF from everyday maintenance to near death experiences, how it's changed since the 70's, the treatments, the pain and the joy in meeting others in this special CF club. As others have said, this book covers so much more. With a German father and Japanese mother, they take you through life as biracial twins in America and Japan, their travels around the world, and the amazing support they found in family and eachother, then much much later boyfriends. Their story is brutally honest about their experiences, and they've had some tough ones. What I loved most was this honesty and ability to infuse some funny in their situations and not take themselves too seriously. It's refreshing. The narration of their mother was hilarious, even though she's their biggest supporter it seems. My only complaint is I'm jealous they went to CF camp and met Bob Flanagan, the camps were gone by the time I knew they existed.

Brilliant girls, thank you!

Editorial Review:

The tragedy of cystic fibrosis has been touchingly recounted before, but this is the first book to portray the symbiotic relationship between twins who share this life-threatening disease through adulthood. Isabel Stenzel Byrnes and Anabel Stenzel tell of their struggle to pursue normal lives while grappling with the realization that they might die young. Their story reflects the physical and emotional challenges of a particularly aggressive form of CF and tells how the twins bicultural heritage Japanese and German influenced the way they coped. The Power of Two is an honest and gripping portrayal of day-to-day health care, the impact of chronic illness on marriage and family, and the importance of a support network to continuing survival. These two remarkable sisters have much to teach about the power of perseverance and about the ultimate power of hope.

The Troubled Dream of Genetic Medicine: Ethnicity and Innovation in Tay-Sachs, Cystic Fibrosis, and Sickle Cell Disease

Keith Wailoo, Stephen Pemberton

Amazon Price: $14.93 List Price: $21.95 Usually ships in 24 hours By: The Johns Hopkins University Press Amazon Marketplace: 37 new & used starting at $9.43

Buy at Amazon.com

Browse similar items by category:
Subjects -> Professional & Technical -> Architecture -> General
Subjects -> Professional & Technical -> Medical -> Basic Sciences -> Genetics
Subjects -> Professional & Technical -> Medical -> Medicine -> Medical Ethics

Customer Reviews:
Total reviews: 1 Average rating: 5.0 of 5

Editorial Review:

Why do racial and ethnic controversies become attached, as they often do, to discussions of modern genetics? How do theories about genetic difference become entangled with political debates about cultural and group differences in America? Such issues are a conspicuous part of the histories of three hereditary diseases: Tay-Sachs, commonly identified with Jewish Americans; cystic fibrosis, often labeled a "Caucasian" disease; and sickle cell disease, widely associated with African Americans.

In this captivating account, historians Keith Wailoo and Stephen Pemberton reveal how these diseases -- fraught with ethnic and racial meanings for many Americans -- became objects of biological fascination and crucibles of social debate. Peering behind the headlines of breakthrough treatments and coming cures, they tell a complex story: about different kinds of suffering and faith, about unequal access to the promises and perils of modern medicine, and about how Americans consume innovation and how they come to believe in, or resist, the notion of imminent medical breakthroughs.

With Tay-Sachs, cystic fibrosis, and sickle cell disease as a powerful backdrop, the authors provide a glimpse into a diverse America where racial ideologies, cultural politics, and conflicting beliefs about the power of genetics shape disparate health care expectations and experiences.

Little Brave Ones: For Children Who Battle Cystic Fibrosis

Carrie Lux

Amazon Price: $14.57 List Price: $17.99 Usually ships in 24 hours By: BookSurge Publishing Amazon Marketplace: 2 new & used starting at $14.57

Buy at Amazon.com

Browse similar items by category:
Subjects -> Health, Mind & Body -> Disorders & Diseases -> General
Subjects -> Health, Mind & Body -> Disorders & Diseases -> Cystic Fibrosis
Subjects -> Health, Mind & Body -> General

Customer Reviews:
Total reviews: 5 Average rating: 5.0 of 5

An informative children's book for CF kids & their families 5 out of 5 stars.
7 of 7 people found this review helpful.

This picture book tells the story of one day in the life of a little girl fighting Cystic Fibrosis. It was written in order to help these small but mighty few find a sense of commonality and see fun photos of other kids who are just like themselves. Kids will enjoy learning about others their age who do daily treatments, take many medicines, and have hospital stays, and hopefully feel not so alone in their battle.

Excellent book for young children with cystic fibrosis 5 out of 5 stars.
4 of 4 people found this review helpful.

I have a 5 year old with cystic fibrosis and he was so excited to see pictures of other children having to do what he does every day - use a vest, nebulizer, take enzymes, etc. He just kept repeating "just like me". This has certainly helped him to not feel like he is the only one.

Such a sweet book.... 5 out of 5 stars.
1 of 1 people found this review helpful.

My 2yr. old son has CF and absolutely loved looking at the pictures of the other children doing what he does daily. I enjoyed reading it to him. What a wonderful learning tool to have for children and adults! Thanks

I love this book 5 out of 5 stars.
1 of 1 people found this review helpful.

This book is a wonderful tool to show your children with Cystic Fibrosis that they aren't alone. They aren't the only one in the world who needs to do these treatments. To be able to see all these children smiling is so beautiful. My son loves looking at this book and has me read it to him over and over. --Charla (A parent of a child with CF)

Editorial Review:

See a day in the life of a preschooler with CF.

Cystic Fibrosis: Everything You Need To Know (Your Personal Health)

Wayne Kepron

Amazon Price: $11.96 List Price: $14.95 Usually ships in 24 hours By: Firefly Books Amazon Marketplace: 44 new & used starting at $0.01

Buy at Amazon.com

Browse similar items by category:
Subjects -> Medicine -> Allied Health Professions -> Respiratory Therapy
Subjects -> Professional & Technical -> Medical -> Allied Health Professions -> Respiratory Therapy
Subjects -> Health, Mind & Body -> General

Editorial Review:

Cystic fibrosis afflicts approximately 30,000 Americans. The average age of survival has been steadily increasing, but not quickly enough: a child born with cystic fibrosis today can only expect to live 35 to 40 years.

In this valuable new addition to the Your Personal Health series, Dr. Wayne Kepron offers a comprehensive look at the disease that afflicts so many young people. Topics include:

• Symptoms of cystic fibrosis
• Making a diagnosis
• Complications of the disease
• Treatments (including lung transplants)
• Techniques and precautions in lung care
• Transition into adulthood
• Prospects for gene therapy
• End-of-life issues

Using diagrams, charts and case studies, Cystic Fibrosis is designed for patients, their families, and caregivers. It is both a quick reference guide and a tool for in-depth study.

Taking Cystic Fibrosis to School

Cynthia S. Henry, Cynthia S. Henry, Tom Dineen

List Price: $11.95 By: JayJo Books Amazon Marketplace: 7 new & used starting at $8.00

Buy at Amazon.com

Browse similar items by category:
Subjects -> Children's Books -> People & Places -> Social Issues -> Special Needs -> Nonfiction
Subjects -> Children's Books -> Reference & Nonfiction -> School & Education
Subjects -> Children's Books -> Science, Nature & How It Works -> Health -> Diseases -> Nonfiction

Customer Reviews:
Total reviews: 1 Average rating: 5.0 of 5

Informative and a great read for kids 5 out of 5 stars.
6 of 6 people found this review helpful.

This book is terrific. It is great for any child that is in the beginning years of school. It educates the reader about cystic fibrosis and assists children in dealing with classmates or friends who may have cystic fibrosis. My seven year old son thought it was informative and fun to read. There should be more books of this kind.

Editorial Review:

These beautifully illustrated and fun-to-read storybooks simplify and normalize complicated childhood conditions, like cystic fibrosis. When read aloud, other children can identify why a peer may be treated differently and begin to empathize with them. In addition, children whose conditions set them apart as being different begin to feel accepted and safe. Each book includes a Kids' Quiz to reinforce new information and Ten Tips for Teachers to provide additional facts and ideas for teacher use.

In Taking Cystic Fibrosis to School, Jessie explains to her classmates that even though she has cystic fibrosis, she can still attend school.

Alive at 25: How I'm Beating Cystic Fibrosis (Understanding Health and Sickness Series)

Andy Lipman

List Price: $24.95 By: Longstreet Press Amazon Marketplace: 12 new & used starting at $4.99

Buy at Amazon.com

Browse similar items by category:
Subjects -> Biographies & Memoirs -> General
Subjects -> Health, Mind & Body -> General
Subjects -> Health, Mind & Body -> Disorders & Diseases -> Genetic

Customer Reviews:
Total reviews: 10 Average rating: 5.0 of 5

Best Book In The World 5 out of 5 stars.
0 of 2 people found this review helpful.

This was a great book it really inspired me.

Wonderful 5 out of 5 stars.
0 of 0 people found this review helpful.

I found the book totally inspiring!! I pray that when my daughter is old enough to read that she will be as inspired as I was. Thank you Andy for doing such a wonderful book!!!

alive at 25 5 out of 5 stars.
0 of 0 people found this review helpful.

I am not a reader, but I could not put this book down. I read it on the beach at Cabo San Lucas. I have kids who are struggling with health problems. This book gives hope and strength to anyone who is facing impossible odds. Andy is obviously a man of deep character and tremendous resolve. If you are struggling yourself or know anyone who is, get them this book.

Editorial Review:

Afflicted with cystic fibrosis since birth, doctors told Andy Lipman's parents he'd be lucky to reach age 25. Over the years, however, Andy has found strength and determination in his athletic pursuits, has surprised his doctors, and defied the medical odds. On his 25th birthday, he picked up a pen and began to write his story. Now 28, healthy, happy, and very much alive, Andy shares his bittersweet story with humor and wit.

With Every Breath: stories by and about people living with cystic fibrosis

Amazon Price: $5.50 List Price: $5.50 Usually ships in 24 hours By: self Amazon Marketplace: 3 new & used starting at $5.00

Buy at Amazon.com

Browse similar items by category:
Subjects -> Health, Mind & Body -> Disorders & Diseases -> Cystic Fibrosis

Editorial Review:

Over 30,000 people in the US have cystic fibrosis, a life-threatening genetic disease that affects the lungs and digestive system. Physically, fighting it is a very perilous struggle. Emotionally, coping can oftentimes be even harder. With Every Breath consists of stories by and about people living with cystic fibrosis. Created to motivate, inspire, and generate positivity for those living with cystic fibrosis, this book is something you can open time and time again. Designed for all ages, this collection of diverse stories offers unique perspectives from patients, a CF doctor and nurse, and family members of those living with the illness. Patients aren't the only ones who will want to read With Every Breath as family members, friends, and doctors can all find inspiration when they open it. The stories range from overcoming challenges, understanding the disease, lung transplants, diagnosis stories, and more. The book is filled with fun artwork, uplifting quotes, and photography. Celine Dion contributed the Foreword, and there are chapters by people of all ages and walks of life. This book is sponsored by the Boomer Esiason Foundation, and all proceeds will go to cystic fibrosis.

David's Promise: A Young Man's Struggle with Cystic Fibrosis

Kathy Sykes

Amazon Price: $14.95 List Price: $14.95 Usually ships in 24 hours By: Virtualbookworm.com Publishing Amazon Marketplace: 19 new & used starting at $12.99

Buy at Amazon.com

Browse similar items by category:
Subjects -> Literature & Fiction -> General
Subjects -> Literature & Fiction -> Contemporary
Subjects -> Literature & Fiction -> Genre Fiction -> Medical

Customer Reviews:
Total reviews: 1 Average rating: 5.0 of 5

Editorial Review:

What would it be like to navigate this life under the shadow of a deadly disease? How would you cope, both physically and psychologically? Approximately 30,000 people in our country live with the devastating illness, cystic fibrosis, and one in twenty Caucasians are carriers of its gene. Many among us are affected by CF, but few really know much about it.

David's Promise delivers an in-depth examination of a young man's life-long confrontation with cystic fibrosis. Through the fictional main character of David, the reader is given a deeply personal chance to experience love's ultimate triumph over illness.

The story explores all the complexities of David's life, and as each layer unfolds, the reader begins to look beyond David's medical diagnosis and into his heart. The young man is a teacher with a pregnant wife and a whole slew of struggles, including the implications of genetic testing, the question of abortion, and denial of medical insurance coverage in this country.

This novel does not pull any punches concerning the stark realities of cystic fibrosis, yet it was written to offer hope and understanding about an often hopeless and misunderstood disease.

AUTHOR BIO: Kathy Howell resides in southern New Mexico with Jack, her husband of thirty years. She is the mother of two adult sons, one who lives with cystic fibrosis. Kathy has also worked in the arena of Early Childhood Education for a large portion of her life.

When not writing, Kathy enjoys swimming, tennis and hiking. She received her B.A. and M.A.T. from Western New Mexico University. This is Kathy's first novel.