Cystic Fibrosis Books - Page 2

Alive at 25: How I'm Beating Cystic Fibrosis (Understanding Health and Sickness Series)

Andy Lipman

List Price: $24.95 By: Longstreet Press Amazon Marketplace: 11 new & used starting at $3.97

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Customer Reviews:
Total reviews: 10 Average rating: 5.0 of 5

Best Book In The World 5 out of 5 stars.
0 of 2 people found this review helpful.

This was a great book it really inspired me.

Wonderful 5 out of 5 stars.
0 of 0 people found this review helpful.

I found the book totally inspiring!! I pray that when my daughter is old enough to read that she will be as inspired as I was. Thank you Andy for doing such a wonderful book!!!

alive at 25 5 out of 5 stars.
0 of 0 people found this review helpful.

I am not a reader, but I could not put this book down. I read it on the beach at Cabo San Lucas. I have kids who are struggling with health problems. This book gives hope and strength to anyone who is facing impossible odds. Andy is obviously a man of deep character and tremendous resolve. If you are struggling yourself or know anyone who is, get them this book.

Editorial Review:

Afflicted with cystic fibrosis since birth, doctors told Andy Lipman's parents he'd be lucky to reach age 25. Over the years, however, Andy has found strength and determination in his athletic pursuits, has surprised his doctors, and defied the medical odds. On his 25th birthday, he picked up a pen and began to write his story. Now 28, healthy, happy, and very much alive, Andy shares his bittersweet story with humor and wit.

Cystic Fibrosis

Margaret Hodson, Duncan Geddes, Andrew Bush

Amazon Price: $187.37 List Price: $198.50 Usually ships in 24 hours By: A Hodder Arnold Publication Amazon Marketplace: 29 new & used starting at $131.03

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Subjects -> Medicine -> Internal Medicine -> Pulmonary
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Editorial Review:

This international and authoritative work, which brings together current knowledge in the field of cystic fibrosis, has become established in previous editions as a leading reference in the field. The third edition continues to provide everything that the clinician or allied health professional treating patients with cystic fibrosis will need in a single manageable volume. Thoroughly revised and updated throughout, it reflects the significant advances that have been made in the field since the second edition published in 2000.
Cystic Fibrosis outlines in detail the basic science that underlies the disease and its progression, putting it into a clinical context. Diagnostic and clinical aspects are covered in depth, as are monitoring the condition and the importance of multidisciplinary care, reflected in the sections into which the new edition has been subdivided to improve accessibility. Future developments, including novel therapies, are covered in a concluding section. The clinical areas have been much expanded, with the introduction of separate chapters covering sleep, lung mechanics and the work of breathing, upper airway disease, insulin deficiency and diabetes, bone disease, and sexual and reproductive issues. A new section on monitoring discusses the use of databases to improve patient care, and covers monitoring in different age groups, exercise testing and the outcomes of clinical trials in these areas. Separate chapters are devoted to paramedical issues, including nursing, physiotherapy, psychology, and palliative and spiritual care.
Throughout, the emphasis is on providing an up-to-date and balanced review of both the clinical and basic sciences aspects of the subject, and to reflect the multi-disciplinary nature of the cystic fibrosis care team. Drawing on the expertise of a team of international specialists from a variety of backgrounds, the third edition of Cystic Fibrosis will continue to find a broad readership among respiratory physicians, pediatricians, specialist nurses and other health professionals working with patients with cystic fibrosis.

David's Promise: A Young Man's Struggle with Cystic Fibrosis

Kathy Sykes

Amazon Price: $14.95 List Price: $14.95 Usually ships in 24 hours By: Virtualbookworm.com Publishing Amazon Marketplace: 18 new & used starting at $14.65

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Customer Reviews:
Total reviews: 1 Average rating: 5.0 of 5

Editorial Review:

What would it be like to navigate this life under the shadow of a deadly disease? How would you cope, both physically and psychologically? Approximately 30,000 people in our country live with the devastating illness, cystic fibrosis, and one in twenty Caucasians are carriers of its gene. Many among us are affected by CF, but few really know much about it.

David's Promise delivers an in-depth examination of a young man's life-long confrontation with cystic fibrosis. Through the fictional main character of David, the reader is given a deeply personal chance to experience love's ultimate triumph over illness.

The story explores all the complexities of David's life, and as each layer unfolds, the reader begins to look beyond David's medical diagnosis and into his heart. The young man is a teacher with a pregnant wife and a whole slew of struggles, including the implications of genetic testing, the question of abortion, and denial of medical insurance coverage in this country.

This novel does not pull any punches concerning the stark realities of cystic fibrosis, yet it was written to offer hope and understanding about an often hopeless and misunderstood disease.

AUTHOR BIO: Kathy Howell resides in southern New Mexico with Jack, her husband of thirty years. She is the mother of two adult sons, one who lives with cystic fibrosis. Kathy has also worked in the arena of Early Childhood Education for a large portion of her life.

When not writing, Kathy enjoys swimming, tennis and hiking. She received her B.A. and M.A.T. from Western New Mexico University. This is Kathy's first novel.

Psychosocial Aspects of Cystic Fibrosis

List Price: $145.00 By: A Hodder Arnold Publication Amazon Marketplace: 5 new & used starting at $215.41

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Subjects -> Health, Mind & Body -> Psychology & Counseling -> Clinical Psychology

Editorial Review:

This work examines the psychosocial impact of the changes that have occurred in cystic fibrosis management. It includes sections on: the aetiology, pathology, course and treatment of cystic fibrosis; personal perspectives; developmental considerations; the illness network; therapeutic approaches; and major contemporary issues such as transplantation, genetic screening and new therapies.

The Stones Applaud: How Cystic Fibrosis Shaped My Childhood

Teresa Anne Mullin

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Total reviews: 5 Average rating: 5.0 of 5

Editorial Review:

Teresa Mullin was diagnosed with cystic fibrosis at four years of age, but it was not until she was nine that she learned most children with the disease were not expected to live to adulthood. What had been a nuisance soon became a force that molded her childhood, youth, and future. In The Stones Applaud, Mullin writes of absences from school, serving as a poster child, frequent hospitalizations, medical treatments, and most painful the isolation that came with cystic fibrosis, an inherited condition that damages the lungs and affects the digestive system. With dry humor and sharp insights, Mullin describes her battles with the disease, teachers, fellow students, and even medical professionals who tried to hold her back from experiencing life. Alternately funny, frank, poignant, and gripping, The Stones Applaud reveals the talented young writer's fierce determination to live, thrive, and persevere. Whether writing about the joy of being accepted to prep school and Harvard University, the tragedies of others deaths, or the pain of a broken friendship, Mullin never resorts to sentimentality or courts pity. The result is a powerful self-portrait of a young woman who bravely faced death while living life, who fought for every breath and every experience, and who challenges others to carry on the fight for dignity and independence for those with chronic illness. Before she died, Mullin visited Ireland and witnessed cold Atlantic waves beat against the cliffs. Inevitably, the cliffs will not withstand the unrelenting waves, but still they persevere and only the stones applaud. Mullin selected that metaphor from a poem by Gerald Dawe as the title of her memoir. She saw herself and others impacted by cystic fibrosis as the stone cliffs, standing resolute and strong in the face of a battle they suspect they will never win.

Cystic Fibrosis: Everything You Need To Know (Your Personal Health)

Wayne Kepron

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Editorial Review:

Cystic fibrosis afflicts approximately 30,000 Americans. The average age of survival has been steadily increasing, but not quickly enough: a child born with cystic fibrosis today can only expect to live 35 to 40 years.

In this valuable new addition to the Your Personal Health series, Dr. Wayne Kepron offers a comprehensive look at the disease that afflicts so many young people. Topics include: - Symptoms of cystic fibrosis - Making a diagnosis - Complications of the disease - Treatments (including lung transplants) - Techniques and precautions in lung care - Transition into adulthood - Prospects for gene therapy - End-of-life issues

Using diagrams, charts and case studies, Cystic Fibrosis is designed for patients, their families, and caregivers. It is both a quick reference guide and a tool for in-depth study.

Taking Cystic Fibrosis to School

Cynthia S. Henry, Cynthia S. Henry, Tom Dineen

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Customer Reviews:
Total reviews: 1 Average rating: 5.0 of 5

Informative and a great read for kids 5 out of 5 stars.
6 of 6 people found this review helpful.

This book is terrific. It is great for any child that is in the beginning years of school. It educates the reader about cystic fibrosis and assists children in dealing with classmates or friends who may have cystic fibrosis. My seven year old son thought it was informative and fun to read. There should be more books of this kind.

Editorial Review:

These beautifully illustrated and fun-to-read storybooks simplify and normalize complicated childhood conditions, like cystic fibrosis. When read aloud, other children can identify why a peer may be treated differently and begin to empathize with them. In addition, children whose conditions set them apart as being different begin to feel accepted and safe. Each book includes a Kids' Quiz to reinforce new information and Ten Tips for Teachers to provide additional facts and ideas for teacher use.

In Taking Cystic Fibrosis to School, Jessie explains to her classmates that even though she has cystic fibrosis, she can still attend school.

Cystic Fibrosis in Adults

List Price: $110.00 By: Lippincott Williams & Wilkins Amazon Marketplace: 12 new & used starting at $35.00

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Subjects -> Medicine -> Allied Health Professions -> Respiratory Therapy

Editorial Review:

Univ. of North Carolina, Chapel Hill. Comprehensive text for the diagnosis and care of adults with cystic fibrosis. Text is organized by the organ systems most affected by CF: molecular and cellular bases of disease pathogenesis, pulmonary disease, gastrointestinal system, and other organ systems. Extensively referenced. DNLM: Cystic Fibrosis--in adulthood.

Treatment of the Hospitalized Cystic Fibrosis Patient (Lung Biology in Health and Disease)

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Editorial Review:

This up-to-the-minute single-source reference provides a complete overview of cystic fibrosis (CF) care for the hospitalized patient, assisting in the successful development of effective management approaches to many of the serious symptoms and complications associated with both the disease and its related long-term treatment effects. Detailing the general principles for inpatient therapy, continued hospitalization, and terminal care, and optimal treatment of specific CF manifestations and complications, Treatment of the Hospitalized Cystic Fibrosis Patient offers the latest contributions on pertinent topics such as · antibiotic combinations and doses · pre- and post-lung transplant care · constipation and distal intestinal obstruction syndrome · complications of multilobular biliary cirrhosis · anti-inflammatory treatment · and much more! Written by internationally recognized experts and furnished with over 1000 literature citations, tables, figures, and photographs, this practical volume is invaluable for pulmonologists, physiologists, pediatricians, internists, chest physicians, gastroenterologists, transplant surgeons, respiratory therapists, and medical and graduate school students in these disciplines.

If I Die at Thirty

Meg. Woodson

List Price: $5.95 By: Zondervan Amazon Marketplace: 10 new & used starting at $1.80

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