Cystic Fibrosis Books - Page 4

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Inner Strength: One Family's Experience With Cystic Fibrosis

Cloyce Jones

Inner Strength: One Family's Experience With Cystic Fibrosis Cloyce Jones Amazon Price: $18.99
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Customer Reviews:
Total reviews: 2 Average rating: 5.0 of 5

Bob Derr, author of "Burke's Tour" 5 out of 5 stars.
0 of 0 people found this review helpful.

I appreciate the willingness of the author to share this remarkable story -- it creates additional awareness of the disease and generates funds to help researchers find beneficial treatments and a cure for this disease. Our son, Burke (who died due to CF in 1997), would very much have appreciated the family emphasis here.

Excellent book giving a family perspective on coping with CF 5 out of 5 stars.
0 of 0 people found this review helpful.

Cloyce Jones is clearly a remarkable woman. She has a strength that most of us can only dream of. This book portrays her family's lives as they cope with death, illness and then the happiness that the birth of healthy child and eventually a successful lung tranplant for Tara bring. With CF it is often one challenge after another but this family found unending courage to battle on. I was saddened by the extra stress caused to a sick child by insurance rules that meant they had to travel hundreds of miles to retain their coverage. It was however warming to read of the joy that the 'Wish Upon a Star Foundation' was able to bring.

Everything You Need to Know About Cystic Fibrosis (Need to Know Library)

Justin Lee

Everything You Need to Know About Cystic Fibrosis (Need to Know Library) Justin Lee Amazon Price: $29.25
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Diseases and Disorders - Cystic Fibrosis (Diseases and Disorders)

Melissa Abramovitz

Diseases and Disorders - Cystic Fibrosis (Diseases and Disorders) Melissa Abramovitz List Price: $28.70
By: Lucent Books
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Editorial Review:

Cystic fibrosis is an inherited disorder of the lungs and digestive system, and is the most common fatal hereditary disease in the U.S. While there is no cure for cystic fibrosis, many recent developments in medicine and gene therapy have made it easier for people to live their lives with this debilitating disease. (20051001)

Cystic Fibrosis: Methods and Protocols (Methods in Molecular Medicine) (Methods in Molecular Medicine)

Cystic Fibrosis: Methods and Protocols (Methods in Molecular Medicine) (Methods in Molecular Medicine) Amazon Price: $140.00
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Editorial Review:

Cystic Fibrosis: Methods and Protocols consolidates cutting-edge in vitro, cellular, and whole animal laboratory protocols into an indispensable resource. From electrophysiology and cell biology, to animal models and gene therapy, this comprehensive set of methods provides the step-by-step instructions needed for investigators to incorporate new approaches into their research programs. Specific protocols describe new techniques for diagnosis, in vitro methods for the expression and functional analysis of CFTR, novel biochemical and cellular systems to determine how mutations subvert CFTR function, and in vivo protocols to examine how CFTR dysfunction produce multisystem pathology in both human and animal models.

Living with Cystic Fibrosis

Melissa Anne Stainback

Living with Cystic Fibrosis Melissa Anne Stainback Amazon Price: $16.95
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Editorial Review:

Melissa was born on February 18, 1987, in Charlotte, North Carolina. Shortly after the critical age of three months, she was diagnosed with cystic fibrosis, back in a time when not many babies/children lived past the age of ten. She lived in Charlotte until she was four years old, when her family moved to Roswell, Georgia. There she attended school and graduated from Centennial High School in 2005. She went on to Gordon College in Barnesville, Georgia, and is currently attending CPCC in Charlotte, North Carolina. Today, she still continues to battle CF daily. Having lost two friends to CF, Melissa is more determined than ever to beat this diagnosis and help others too. Her family and friends mean the world to her, and as you read her life story you will see what challenges and obstacles she had to face and is still facing today just to try to live a normal life. Every year with the help from family and friends, Melissa raises thousands of dollars for the Cystic Fibrosis Foundation called Bowl for Breath. Part of the proceeds from this book will go to the CF Foundation in Atlanta, Georgia.

Cystic Fibrosis and You

Emilie Sasso

Cystic Fibrosis and You Emilie Sasso Amazon Price: $24.95
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Editorial Review:

This book is all about having a positive attitude in life and accomplishing your dreams. My hope in writing this book is to give encouragement to children and teens with cystic fibrosis. My sisters Bonnie and Kate accomplished everything in this book and more with CF. Never let cystic fibrosis hold you back from living life to the fullest.

Lung transplants fail to extend lives of most CF patients, study finds.(cystic fibrosis)(Brief Article)(Statistical Data Included): An article from: Transplant News

Lung transplants fail to extend lives of most CF patients, study finds.(cystic fibrosis)(Brief Article)(Statistical Data Included): An article from: Transplant News Amazon Price: $5.95
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Editorial Review:

This digital document is an article from Transplant News, published by Transplant Communications, Inc. on January 12, 2002. The length of the article is 667 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Lung transplants fail to extend lives of most CF patients, study finds.(cystic fibrosis)(Brief Article)(Statistical Data Included)
Publication: Transplant News (Newsletter)
Date: January 12, 2002
Publisher: Transplant Communications, Inc.
Volume: 12 Issue: 1 Page: NA

Article Type: Brief Article, Statistical Data Included

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The 2002 Official Patient's Sourcebook on Cystic Fibrosis

The 2002 Official Patient's Sourcebook on Cystic Fibrosis Amazon Price: $28.95
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Editorial Review:

This book has been created for parents who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells parents where and how to look for information covering virtually all topics related to cystic fibrosis (also fibrocystic disease of pancreas; mucosis; mucoviscidosis; pancreatic fibrosis), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on cystic fibrosis. Given parents' increasing sophistication in using the Internet, abundant references to reliable Internet-based resources are provided throughout this sourcebook. Where possible, guidance is provided on how to obtain free-of-charge, primary research results as well as more detailed information via the Internet. E-book and electronic versions of this sourcebook are fully interactive with each of the Internet sites mentioned (clicking on a hyperlink automatically opens your browser to the site indicated). Hard-copy users of this sourcebook can type cited Web addresses directly into their browsers to obtain access to the corresponding sites. In addition to extensive references accessible via the Internet, chapters include glossaries of technical or uncommon terms.

21st Century Complete Medical Guide to Cystic Fibrosis (CF), Authoritative Government Documents, Clinical References, and Practical Information for Patients and Physicians (CD-ROM)

PM Medical Health News

21st Century Complete Medical Guide to Cystic Fibrosis (CF), Authoritative Government Documents, Clinical References, and Practical Information for Patients and Physicians (CD-ROM) PM Medical Health News Amazon Price: $25.00
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Editorial Review:

This up-to-date electronic book on CD-ROM provides the best collection available anywhere of official Federal government information and documents on the subject of cystic fibrosis. This CD-ROM uses next-generation search technology that allows complete indexing and makes all files on the disc fully searchable. For patients, practical information is provided in clearly written patient education documents. For medical professionals, doctor reference tools and texts have detailed technical information and clinical background material.

This thoroughly researched collection presents vital information from many authoritative sources: National Institutes of Health (NIH), Centers for Disease Control (CDC), Food and Drug Administration, National Heart, Lung, and Blood Institute (NHLBI), and the National Institute of General Medical Sciences (NIGMS). Contents include clinical and medical information, with information on signs, symptoms, nutrition, testing, diagnosis, treatment, and more.

In addition, as a bonus we have included an encyclopedic collection of general medical and health documents – thousands of pages with extensive material from the CDC and NIH on hundreds of diseases and health topics from A to Z, along with FDA drug and medical publications, government consumer healthcare tips, disease prevention programs, dietary guidelines, and travelers’ health information. Since navigating the Internet to find additional non-governmental medical information can be confusing, we've also provided our exclusive "Guide to Leading Medical Websites" with updated links to 73 of the best sites for medical information! By using weblinks on the CD-ROM, you can quickly check for the latest clinical updates directly from the government.

This CD-ROM has over 30,000 pages reproduced using Adobe Acrobat PDF software and Reader software is included. Advanced search and indexing features are built into our reproduction, providing a complete full-text index. This enables the user to search all the files on the disk at one time for words or phrases using just one search command! The Acrobat cataloging technology adds enormous value and uncommon functionality to this impressive collection of government documents and material. There is no other reference that is as fast, convenient, comprehensive, and portable!

Our CD-ROMs are privately-compiled collections of official public domain U.S. government files and documents - they are not produced by the federal government. They are designed to provide a convenient user-friendly reference work, utilizing the benefits of the Acrobat format to uniformly present thousands of pages that can be rapidly reviewed or printed without untold hours of tedious searching and downloading. This book-on-a-disc makes a superb reference work and educational tool for patients and their families, physicians, and other medical professionals. (Information on this CD-ROM is NOT a substitute for professional medical advice; of course, readers are urged to consult with a professional health care provider for any suspected illness.)

The 3120 +1G[right arrow]A Splicing Mutation in CFTR Is Common in Brazilian Cystic Fibrosis Patients.(Statistical Data Included): An article from: Human Biology

Giselda M. K. Cabello, Pedro H. Cabello, Juan Llerena Jr., Octavio Fernandes, Ann Harris

The 3120 +1G[right arrow]A Splicing Mutation in CFTR Is Common in Brazilian Cystic Fibrosis Patients.(Statistical Data Included): An article from: Human Biology Giselda M. K. Cabello, Pedro H. Cabello, Juan Llerena Jr., Octavio Fernandes, Ann Harris Amazon Price: $5.95
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Editorial Review:

This digital document is an article from Human Biology, published by Wayne State University Press on June 1, 2001. The length of the article is 3483 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: The 3120 +1G[right arrow]A Splicing Mutation in CFTR Is Common in Brazilian Cystic Fibrosis Patients.(Statistical Data Included)
Author: Giselda M. K. Cabello
Publication: Human Biology (Refereed)
Date: June 1, 2001
Publisher: Wayne State University Press
Volume: 73 Issue: 3 Page: 403

Article Type: Statistical Data Included

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